The National Heart, Lung and Blood Institute (NHLBI) awarded a large 5-year R-24 research infrastructure grant to Society member Dale Needham, FCPA, MD, PhD, for a project entitled “Improving Long-Term Outcomes Research for Acute Respiratory Failure.”
Dr. Needham is Director of the Outcomes After Critical Illness and Surgery (OACIS) Group, a multidisciplinary clinical and research group focused on understanding and improving patient outcomes after critical illness and surgery, at Johns Hopkins University School of Medicine.
This NIH-funded project has completed the development of many resources for researchers conducting long-term follow-up of patients surviving acute respiratory failure and acute respiratory distress syndrome (ARF/ARDS), including:
- Recommendations for long-term outcomes and associated measurement instruments for research in this patient population. A database of recommended survey instruments and clinical testing methods for evaluating the long-term physical, cognitive, and mental health outcomes of survivors of ARF/ARDS is available at www.improvelto.com/instruments.
- Practical tools for maximizing patient cohort retention for longitudinal long-term outcomes research studies. Cohort retention tools are available at www.improvelto.com/cohort-retention-tools.
- Statistical tools and programs to appropriately address the competing risk of mortality in analyzing long-term functional outcomes in this patient population. A software tool that imputes missing data among survivors and then implements statistical approaches for addressing mortality when evaluating long-term functional outcomes is available at www.improvelto.com/stats-tools.
Visit www.improvelto.com to learn more about this project and stay up to date on its progress.